Friday, January 25, 2008
Wednesday, January 23, 2008
Saturday, January 19, 2008
I, thankfully, received the following in my email this morning and with great delight, I may add!
MIGRAINE RESEARCH FOUNDATION LAUNCHES WITH ANNOUNCEMENT OF FIRST ANNUAL RESEARCH GRANTS
FOUNDATION FUNDING RESEARCH TO END DEBILITATING
PAIN OF MIGRAINE SUFFERED BY MILLIONS
New York, NY – More than 30 million Americans suffer from migraine, yet research into the causes of migraine is both severely underfunded and neglected. Today, the Migraine Research Foundation officially launched its efforts to address the lack of research in this field by announcing the first annual research grants awarded by the Foundation. The Foundation is awarding nearly $200,000 in grants for 2007 and plans to more than double the grant amounts to at least $500,000 in 2008.
Founded by Stephen Semlitz and Cathy Glaser, whose family has struggled with the devastating effects of migraine for many years, the Migraine Research Foundation is dedicated to funding research that will end the debilitating pain of migraine that afflicts millions of men, women and children.
“Our family was surprised to find out that research efforts into migraine were enormously lacking,” said Ms. Glaser. “After talking with many doctors and migraine sufferers, it became clear that my husband and I could make a real difference in the lives of millions of people by supporting scientific research into the causes of migraine. That is why we founded the Migraine Research Foundation, which we foresee growing into the largest private funder of migraine research in the United States.”
Every 10 seconds, someone in the United States goes to the emergency room with a headache or migraine. American employers lose more than $13 billion each year as a result of 113 million lost work days due to headache or migraine. The lack of research into migraine is astonishing considering the widespread impact and consequences that this devastating condition has on American families and businesses. Over 10% of all Americans, including children, suffer from migraine, and nearly one in four households includes someone with migraine.
This paragraph here just blew me away: every. 10. seconds! Think about that for just 10 seconds and count that down would you. Every 10 seconds, someone in the US goes to the ER with a headache or migraine. Been there, done that. Thankfully, I have never been treated as a drug-seeker, like I've read about. But every 10 seconds is astonishing.
Guiding the efforts of the Migraine Research Foundation is a medical advisory board that includes leading neurologists and scientists from across the country and is chaired by Dr. Joel Saper of the Michigan Headache & Neurological Institute in Ann Arbor, Michigan.
“Migraine is underresearched by the scientific community, undertreated by physicians, and underappreciated by society,” said Dr. Saper. “There is no condition of such magnitude - yet so shrouded in myth, misinformation, and mistreatment - as migraine. The Migraine Research Foundation is about more than just the research that it will fund directly – it is about stimulating others to join us in addressing a critical gap in medical research.”
In addition to Dr. Saper, the medical advisory board of the Migraine Research Foundation includes Dr. Rami Burstein (Harvard University), Dr. F. Michael Cutrer (Mayo Clinic, Rochester, MN), Dr. David W. Dodick (Mayo Clinic, Scottsdale, AZ), Dr. Peter J. Goadsby (University of California – San Francisco), Dr. Richard Lipton (Albert Einstein College of Medicine, Bronx, NY), and Dr. Stephen D. Silberstein (Jefferson University Hospital, Philadelphia, PA).
The Foundation’s first round of annual research grants, totaling nearly $200,000, has been awarded to four researchers whose work holds the promise of groundbreaking advances in the search for the causes of migraine. The recipients and the research they will be pursuing include:
· Richard Lipton, MD Albert Einstein College of Medicine, Bronx, NY
Towards a Migraine Genetics Population Laboratory: Building on the American Migraine Prevalence and Prevention Study
· Michael Oshinsky, Ph.D., Thomas Jefferson University, Philadelphia, PA
Glial Activation and the Chronification of Headache
· Frank Porreca, Ph.D., University of Arizona, Tucson, AZ
Behavioral Model of Medication Overuse Headache
· Ann Scher, Ph.D., Uniformed Services University, Bethesda, MD
Migraine in Middle Age and Late Life: A Longitudinal Analysis of Factors Related to Migraine Prognosis in a Large Population-Based Cohort
The Migraine Research Foundation has already committed to more than doubling the funds available for research grants in 2008 to at least $500,000, with funding coming from the support of an expanding network of individual donors, foundations and corporations. The Foundation also plans annual increases to the total amount of grant awards in subsequent years. Information on applying for 2008 grants will be made available in February 2008.
The Migraine Research Foundation (formerly The Migraine and Pain Fund) is a nonprofit 501(c)(3) organization dedicated to ending debilitating pain through funding scientific research into the causes and better treatment of migraine. More information about the Foundation and how to contribute to its efforts can be found at http://www.migraineresearchfoundation.org/.
This site is, as I found, quite interesting; with vivid pictures of migraines and stories that you can read, and add. Please add your name to the mailing list for further information to more research on migraine disease.
Truly hoping YOU are pain-free today.
Wednesday, January 16, 2008
For those of you who are sooooo busy, or, no scratch that; who are like me! God help all four of you, at any case; I would like to inform you that this Sunday, the 20th is Penguin Awareness Day. Yes, seriously. Who knew? I did. So I've decided to give my appreciation to the frigid-liking little - oh and I've learned the NOT so little Penguins.
This little guy here to the rrrrrrright is an Adelie Penguine, the little tuxedo type. Isn't he cute as a button!!!!
Ok, what are they saying?????? Too funny! They're Soprano Penguins and their names are Frank and Vinny.
Frank: You takin to me?
Vinny: NO, you takin to ME?!
Frank: I'll trow you in dat dere iceberg.
Vinny: I dint say nuttin Frank.
Ok, so they're not soprano penguins; they are King Penguins. Did you know that the male penguin will carry the egg on his little feet, and set his rolly polly belly on it to keep it warm? Most penguins flocks will take turns keeping the eggs warm. How sweet.
The Emperor Penguin, now this is a biggie. They are the largest of the species, and stand at 4 feet tall. No kidding. Ok, I am 5 feet tall, so that would be very interesting to have a penguin come up next to me, or a flock of them rather at Nicholas' height. I wonder what he would think of that. hmmmmmmm
Now this next set of penguin took me by the name alone - who comes up with this stuff???? I introduce to you the Jackass
not very nice, is it. Interesting enough, the "jackass," as they are called don't live in the frigid, icy waters like their cousins; they live in the Southwestern part of Africa. So, why the name? Well, it has more to do with the sounds they emit when they open their cute little beaks. They let out a very loud braying cry like a donkey. Just don't try packing your suitcases on them.
So on Sunday, appreciate a penguin. Oh, and trust me, I actually have more weird stuff where this came from.
Stay tuned for January 24: National Compliment Day(good, bad, you be the judge). and who can't get enough of this??
January 28: Bubble Wrap Appreciation Day. ooooooh fun fun fun!!!!! thankfully, I have earplugs. (Run, Rocco)
January is also noted as Oatmeal Month. So bake some cookies, eat your oats; oh that reminds me of a song my Mother used to sing; anyone remember this?
Mares eat oats
and does eat oats
and little lambs eat ivy
a kid'll eat ivy, too
Ok, enough of that
hope you're pain free
Tuesday, January 15, 2008
The following is yet another wake-up call for those who still refuse to believe that Migraine is, in fact, more than just a nagging headache. Oh, and that we patients, who enter the ER, or office with our heads banging, quite literally, are there for a reason: we are desperate for answers. Yes, answers. We are not drug-seekers; though (a small number of) you may view us as such. In truth, we really just want the pain to go away. Here is a fear of mine:
MAGNUM, The National Migraine Association, has an excellent mission statement. One section of it reads:
"To make persons aware that Migraine is not a benign disorder. For example, 27% of all strokes suffered by persons under the age of 45 are caused by Migraine. (Stroke is the third leading cause of death in this country.) In fact, more people died from Migrainous stroke last year than were murdered by handguns."
Migraine and Stroke People who suffer with migraine headaches may have an 80 percent higher risk of stroke than those who don't have the painful headaches. Stroke is the third-leading killer in the United States. Compounding the problem is that the term "migraine" is one of the most frequently overused medical words. Migraine sufferers have complained that they encountered skepticism from doctors when first suggesting they might be experiencing migraine headaches... Recognizing early stroke symptoms also is important. Some of the warning signs of stroke include sudden loss of vision or blurred vision, particularly in one eye; sudden difficulty speaking or understanding simple statements; sudden numbness, weakness or paralysis of the limbs or face; unexplained dizziness or loss of coordination. You need immediate medical attention if those symptoms develop."
A point on which there is general agreement is that migrainous stroke risk is increased in the presence of untreated migraine and other risk factors:
"Long-term migraine without treatment has been shown to predispose sufferers to increased effect on the blood vessels of the brain, especially in those with signs of migraine with aura (classical migraine). Persons who have visual or neurological symptoms accompanying their migraine attacks should avoid other risk factors such as smoking, high cholesterol diets, the use of estrogen and untreated hypertension. These risk factors for cerebral vascular disease, if present in a setting of migraine, may greatly increase the risk of one having a migraine related stroke."
2 Stephen D. Silberstein, M.D., Richard B. Lipton, M.D., Donald J. Dalessio, M.D., Wolff's Headache and Other Head Pain. (New York, Oxford University Press, 2001) 207-211.
3 Michael John Coleman, Terri Miller Burchfield of M.A.G.N.U.M. An Understanding of Migraine Disease & Tips for Migraine Management.http://www.migraines.org/myth/mythreal.htm
Health Watch is a Public Service of the Office of News and Publications & the Library at University of Texas Southwestern Medical Center at Dallas. http://www3.utsouthwestern.edu/library/consumer/migrain.htm
The National Headache Foundation: Topic Sheetshttp://www.headaches.org/topicsheets/stroke.html
ACHE: The American Council for Headache Education: When a Nasty Headache Comes Back.http://www.achenet.org/news/art3.php
Tuesday, January 08, 2008
Monday, January 07, 2008
Got a boo-boo? Oh, please! Talk to Vanessa; cause man, ain't Nobody got a BOO-BOO like the blood and guts coming out of Ms. V. UH UH! And she will tell you a story like you have never heard one told - by a 6 year old. This little girl has got IT going on. And on. And on and on andonandononononononon.........
Jeff: (never wanting to be offensive-very sweet kid) Ok, ok. How about, (suggests a place)
Philip: ( Laughs him off and leaves it to Raches and Jaquan.) Rachel is better at this, Man! You
Nobody really looks at Jeff seriously. We do love Jeff, he's a great kid. Has a wonderful family. He tells us he has, get this, it's truly amazing; he has NEVER (I still revel in it) seen or heard his parents argue or fight. Isn't that awesome! What an inspiration that is, huh?
Right, the first pic, I think they were as dumbfounded as me in the conversation. The second; is the Battle of the Word Sleuth Competition. Christina won. 3-1, I think. Then it was pile on Jeff. He is a Rodney Dangerfield in the making. No respect.
We had him in the kitchen with the snakes for a good time as well. My parents were in on it, too. He was holding one of them, which was the funniest part; I told him that when they are ready to strike, they will coil their heads back. And no sooner did I say that, the snake he was holding did just that, but not in an aggressive way, just to look at him. Our snakes like to be handled. But he thought he was about to be, well, struck. So we, naturally kept it going. ALL of us. We had him pretty terrified. The more he tried to give the snake TO Philip, the more it tried to stay WITH him, which of course, terrified him more. And made us laugh.
Unfortunately, I didn't get any pictures of it, because I suck. At that time, it was probably nearing 11:30 or so, and my head was probably at oh, a 6ish. I had been downing glass after glass of ginger ale all day and night. I could not wait to get to bed. But I was having a good time. Phil was home, my family was there. We had a few neighborhood friends by. It was nice. The kids were up late. Oh, so very late.
Once the New Year finally did ring in; I put my littlest man to bed, said "Good-bye" to those who were leaving; and "I'm sorry, but I need to go to bed" to those that stayed. And then, I was up. all. night. long. tossing. turning. moaning. groaning. Wishing I could sleep, or die. Something other than what I was doing, which was mere torture. No, it was a prelude to torture. That came gradually in the next few hours. To my stomach, my neck. and oh, my aching, pounding, clamouring freaking head.
The infusion that started the Friday after Christmas; didn't end until the Friday after New Year. As of today, I hope, the cycle has finally broken. Out of the 1 - 10 rating, today I'm at somewhere around the 3-4 range, roughly. My brain feels like I haven't quite caught up with myself yet. I'm not ready to drive, oh no. Definitely not. I feel scatter-brained.
When I need answer with a "no" I'm finding myself running up with 2-4 no no NO NO's and yelling it. It happened lastnight for no apparent reason when Frank and the kids asked me a simple Q? after dinner. It was like I was stuck in a mumble on the word or something and I couldn't get off. Has anyone ever done that???? Please tell me I'm not the only one! I do that with the letter "M" when I'm in the storm, too. Get stuck on 'mmmmmouse' mmmmother or it'll come out like mumumumu - ever done that????
Ok, enough for today. llook it's after 2, I'm still in my jammies; AGAIN! SHOCKER! this isn't my norm.
hoping YOU are pain free today